In the world of medical complexity, I recognize our privilege

Our family is lucky... like damn lucky... to be in the position we are. How can that be? A medically complex/medically disabled kid, job loss, and multiple other laments I've written about and journaled about. For everything we've fought for and been through with Bowen, he is a resilient and happy toddler. Every day is … Continue reading In the world of medical complexity, I recognize our privilege →

Meet Bowen!!

* This post was originally written for curetbm.org and was prior to us learning that Bowen would require surgery for his condition. First published on 5/13/2021 Some babies are just fussy eaters… I’ll never forget these words from our labor and delivery nurse after I gave birth to Bowen. Hindsight is 20/20, and in our … Continue reading Meet Bowen!! →